Cancer programs and resources

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Find helpful resources and programs to support you, your child and your family during your child's cancer treatment.

Key points

  • There are many different resources to help you and your teenager manage cancer including books and websites.
  • Your teenager may wish to participate in clinical trials or workshops about cancer.

You may find the following resources and programs helpful.

General books

Carroll, W.L., & Reisman, J. (2005). 100 Questions & Answers About Your Child’s Cancer. Jones & Bartlett Learning.

Woznick, L.A., & Goodheart, C.D. (2002). Living with childhood cancer: A practical guide to help families cope. American Psychological Association.

Online information about cancer and cancer in teens

Canadian Cancer Society

Cancer Fight Club

Childhood Cancer Guides

CureSearch

"When your child has cancer" from the American Cancer Society

Parenting through the teen years

Nelson, J., & Lott, L. (2012). Positive Discipline for Teenagers. Harmony.

Learn about or order the book here: http://store.positivediscipline.com/positive-discipline-for-teenagers.html

Wolf. A. (2002). Get Out of My Life but First Could You Drive Me and Cheryl to the Mall? : A Parent’s Guide to the New Teenager. Farrar, Straus and Giroux.

Wolf, A. (2011). I’d Listen to My Parents If They’d Just Shut Up: What to Say and Not Say When Parenting Teens. William Morrow Paperbacks.

Cancer and sexuality

Fertility and Sexual Side Effects in People with Cancer (for adults) from the American Cancer Society

Tools for Parents from Planned Parenthood

Managing side effects and symptoms at home

Managing Cancer--related Side Effects from American Cancer Society

Drug coverage and paying for medications

Provincial and Territorial Public Drug Benefit Programs

Late effects and long-term follow-up

Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers from Children’s Oncology Group

Late Effects of Treatment for Children’s Cancer from CureSearch for Children’s Cancer

General Information about Late Effects from National Cancer Institute

Keene, N., Hobbie, W., and Ruccione, K. (2012). Childhood Cancer Survivors – A Practical Guide to your Future. Childhood Cancer Guides.

For information or to order: https://www.childhoodcancerguides.org/our-books/childhood-cancer-survivors/

Research and clinical trials

Children’s Cancer Research from CureSearch for Children’s Cancer

Clinical Trials: What You Need to Know from American Cancer Society

Online services to help you communicate with family and friends

Caring Bridge

Workshops and camps for teens

Look Good Feel Better

Our Kids

Camps.ca

Resources for siblings

Super Sibs from Alex's Lemonade Stand Foundation

When your Brother or Sister Has Cancer: A Guide for Teens from National Cancer Institute

Resources to suggest to friends

Taking Charge: A Cancer Resource for Friends (See pages 5-7, Practical Advice for Family Friends and Co-workers) from American Childhood Cancer Organization

Resources for teachers when your teen returns to school

Helping Schools Cope with Childhood Cancer – a free copy is available to any parent of a child with cancer. From Pediatric Oncology Group of Ontario

Keene, N. (2013). Educating the Child With Cancer: A Guide for Parents and Teachers. Acco.org.

From the Candlelighters Childhood Cancer Foundation. For information or to order: http://www.acco.org/we-can-help/for-kids/books/

Last updated: setembro 3rd 2019